Sunday, December 29, 2013

Where is God?

Last night we had a really nice visit with my brother and brother-in-law.  They were asking all about Jim's diagnosis and treatment and of course, "How are YOU?" Then David asked, "what question should we ask that we haven't?" Later on, that question really got me thinking, and perhaps because my brother is a minister, it made me think about God. Neither Jim nor I have written here about God. We know that many of you are praying for us and this means so much to both of us. 

I was raised in a church-going family, twice on Sundays, Wednesday night Bible study and Thursday night choir practice.  There were pleasantly blurred lines between family and congregation. I was raised American Baptist, which I later learned is quite different from Conservative or Southern Baptist.  My parents were (and are) loving, welcoming, compassionate and have a daily relationship with God. When I was old enough to think for myself, I accepted Christ as my personal Lord and Savior. Over the years I learned that for me, organized religion was not a path I chose, however I have a deep and abiding faith and spirituality. 

Years ago I sat at the bedside of a friend in his final days. We talked late into the night about why each of us are here. Kurt believed that God asked special angels to come back to Earth and live with HIV to teach us all compassion. In the middle of the night, as Kurt slept, I must've dozed off because I woke with a start with one thought in my head, Romans 13:9.

As soon as I got home, I looked up the passage in my Bible. 

The commandments, “You shall not commit adultery,” “You shall not murder,” “You shall not steal,” “You shall not covet,” and whatever other command there may be, are summed up in this one command: “Love your neighbor as yourself.” 

That was it, the answer to what is my purpose, to why are we here, to how do I respond to life's curves: the answer is love. believe that we are put here on Earth for a purpose, and that purpose is simply to love each other. As Chrissie Hynde sang, "now the reason we're here, is to love each other, take care of each other, is to help each other, stand by each other."

Through our journey, I have never doubted the presence of a higher power. I have never asked, Where is God? Why me? I believe that God is here and God is everywhere.  I do not believe God gave Jim cancer, anymore than God caused a 13 year-old girl to come out of tonsil surgery as brain-dead.  I do believe that everything we have been through in our lives prepares us for everything to come. Thich Nhat Hahn says, in Living Buddha, Living Christ, "To breathe and to know you are alive is wonderful. Because you are alive, everything is possible... Please don't waste a single moment. Every moment is an opportunity to breathe life into the Buddha, the Dharma, the Sangha (the community). Every moment  is an opportunity to manifest the Father, the Son and the Holy Spirit."


Friday, December 27, 2013

Keeping our eye on the prize

Here we are, celebrating the holidays at the infusion center.  With the help of Phoenix Tears and decadron, Jim finally started feeling better...today! Jim got his chest x-ray then we crossed the hall to the infusion center, which is surprisingly hopping today! After his B-12 shot (which made him very happy), he's getting saline, then dexamathasone, (anti-nausea steroid) then his chemo, docetaxel. It is quite the chemistry experiment and sometimes feels overwhelming, but we have confidence in our care team and trust them, literally, with Jim's life.

Going forward Jim will take a supplement which is shown to reduce the muscle aches that he experienced last time. He will also be taking a small dose of steroids to help combat fatigue and we are hoping the Phoenix tears also have an ongoing positive impact on energy, appetite and ease of breathing.


So that is all of the practical stuff we are doing.  The emotional stuff is a bit more of a challenge.  We are cherishing the moments we have and taking it one day at a time...sometimes easier said than done. Jim has been and continues to be a fighter. His spirits are strong and with the support we feel from all of you, and our care team, we know we will get through this. We are seeking balance between one day at a time and keeping the prize in sight.  We still believe we will beat the odds and Jim says he'll be the first 20 year lung cancer survivor, so at seven months we are just barely on our journey.  
Thanks for being there for us along the way!

Thursday, December 26, 2013

A Season of Love

We had a short and sweet visit with Bobby and his bride, Melinda and of course, it was commemorated in video, Christmas in Cali.  We went to Monterey Bay Aquarium and had a wonderful Christmas dinner with the McFarlands.  Today, after putting the kids on a plane, we had our pre-chemo visit with the onco doctor. Jim has been coughing a lot and he's been losing sleep (so I have, too) so we are looking for some relief. Doc gave us a few suggestions and some new meds. We'll get a new lung x-ray tomorrow and then we'll get a follow-up CT scan in three weeks.

We hope you all had a wonderful Christmas and are enjoying the blessings of the season with those you love.
   




Sunday, December 15, 2013

Taxotere - quick update

 We had hoped that only taking one chemo drug would be easier to take than the two, however the new drug, Taxotere has been an adventure. One of the common side effects is muscle and joint pain.  They weren't kidding!  We think we have a handle on it now with supplements, but the first week was pretty rough.  Today is football day and we are hoping the Vikings won't snatch defeat from the jaws of victory. We will decorate the tree after the game.  I have one more week of school and Bobby & Melinda arrive Friday!  We are looking forward to a wonderful week with our little family.

Thursday, December 5, 2013

Winds change, we adjust our sails

Starting the day with happy news, our niece, Janelle, added to our wonderful family a beautiful, big 10lb7oz baby boy, we are so happy to welcome Jack into our family.

Today Jim is starting a new chemo drug which attacks the cells' ability to replicate.  There are, of course, new side effects and drugs to help avoid them.  He is still losing weight so we have to get back on track with his fat and calorie boosting diet...and I need to lose a pound for every pound he needs to gain!



We are feeling hopeful that this new tack will have positive results and as always, we appreciate your continued love, prayers and support.