Because I spend it with you.Sorry for the drought of posts. October is such a busy month. Last week was big boy chemo #5, only one more to go. This past week, then, has been recovery week and it has been a tough one for both of us. Nausea is back and along with it a new side effect of sleeplessness. Jim's body is restless all the time, not just the Man of Action kind of restless but what I call the flopping fish on the bank of a river restless. He is on a new med that will help him sleep. It's frustrating because we get him off the pain meds, only to have new meds introduced.
The realization that this is our new normal is both overwhelming and reassuring. Although cancer sucks, we feel like "we've got this". We have a pretty good sense of what we are facing with the maintenance chemo, and we know the side effects of that will be much less than what we, and I do mean we, are going through. The maintenance chemo will still be every three weeks but will consist of only Alitma on top of the anti-nausea and steroid that he has been getting. Carboplatin will be dropped and that is the one, according to the doc, that has been giving him all the problems. Jim is hoping that since the new regime will be more manageable, he'll go back to work in January. I continue to have mixed feelings about this, but agree that he should do it if it makes him happy.
That really is our new normal, to try to embrace the here and now.
Thank you for being part of our journey.
